

25 and …
To all who peruse this post, I extend to you the thought of the accomplished folk artist Burl Ives who once sang “have a holly, jolly, Christmas, it’s the best time of the year.” OK, well maybe its not the best time of the year but it certainly can bring about much good cheer. Well, Hallelujah! I made it to two years post CAR T procedure. Back in December 2023 (the exact date of receiving my reconfigured T cells was 12/26/23 – day after Christmas) the future and what was to

Mark Pajak
Dec 21, 2025


On Everyday Joy
It’s that time of year when merry cheer is lauded as the trademark of holiday spirit. Just look at the lyric sheet for any popular carol and the synonyms leap out at you: Wonder, love, light, comfort, joy, bright, happy, jolly, cheer, delight bushels of fun and a beautiful sight … to name a few. One can feel social pressure to exhibit happiness, an expectation to display laughter and smiles. Certainly, I receive joy from positive interactions with friends and family. But

Anne Mason
Dec 19, 2025


Shucks
Expectation: A strong belief that something will happen or be the case in the future Disappointment: A sadness or displeasure caused by the non-fulfillment of a hope or expectation. Happy Thanksgiving. May the joys of the season extend to all readers. When I went in for my Car T Cell Procedure, I was told that I could expect about 12 – 18 months without treatment (chemo). As time progressed, that estimate was raised to 18 - 24 months. November 2025 marks twenty-three months

Mark Pajak
Nov 21, 2025


On Invisibility and Interior Glimpses
Upon learning that I have MS, others often extort some iteration of: “I’d never’ve known from looking at you!” “You look great! You must be doing well.” “You don’t look sick…” I acknowledge the complementary subtext of such statements, ignoring the psychological zing it triggers, graciously thanking my interlocutor while fighting the urge to sardonically snap, “looks can be deceiving.” The reality is, much of the burden of multiple sclerosis is veiled to the naked eye. Neurol

Anne Mason
Oct 28, 2025


Surviving, I Think
Twenty-two months removed from my Car T Cell procedure and overall, my numbers are holding steady. This past month I had an injection of stem cells (harvested some 10 plus years ago when I went through a stem cell/bone marrow transplant) in an attempt at increasing my ANC number which has been hovering in the very low range (as low as 200) for quite some time. The result to date indicates a slightly improved ANC situation. Shots and infusions attempting to generate better num

Mark Pajak
Oct 21, 2025


A Need To Purge
(Maybe I need a vacation) Twenty-one months since my CAR T cell procedure, and my cancer numbers are holding steady. The monoclonal peak...

Mark Pajak
Sep 18, 2025


On Permission
I’m a recovering over-achiever. Hustler. Striver. But if you’ve been reading my columns for a while, you probably already gathered that....

Anne Mason
Sep 15, 2025


Bucked Off
I still do not feel 100% following a turn with pneumonia but as Gene Autry, the Singing Cowboy once sang, “I’m back in the saddle again”....

Mark Pajak
Aug 26, 2025


On Travel
A handful of months after receiving my MS diagnosis in 2014, I boarded an international flight that deposited me in Istanbul, Turkey to...

Anne Mason
Jul 29, 2025


Detour
This month is like none before. About three weeks ago, I started to have some profoundly serious fatigue and lack of motivation. I was...

Mark Pajak
Jul 23, 2025


On Outdoor Activity
Ask anyone in Wyoming and they’ll tell you that our summer weather and access to the outdoors makes enduring the brutal winters worth it....

Anne Mason
Jun 24, 2025


About Yesterday
Month 18 post Car T Cell protocol and my blood numbers are holding steady. Other than the routine monthly shots to increase my ANC...

Mark Pajak
Jun 24, 2025


Today – Tomorrow
I go in for my monthly blood draw on Monday at 11:00 am and, as usual, I am a bit nervous about what will be revealed. 17 months post CAR...

Mark Pajak
May 22, 2025


On Retirement
I’m nearing one full orbit of the sun since stepping down from a top leadership position at the theatre company that I founded twelve...

Anne Mason
May 20, 2025


On Running
In the months after my MS diagnosis, riddled with the WebMD-derived fear of a wholly dependent, disabled future, I ran. A lot. I embarked...

Anne Mason
Apr 25, 2025


Just Don’t Know
Sixteen months post Car T and gratefully not much has changed since the last post. Numbers are holding steady regarding the monoclonal...

Mark Pajak
Apr 22, 2025


15 Months/Tons
It has been almost fifteen full months since my CAR T cell procedure. December 2023 seems like a long time ago. Again, I am reminded that...

Mark Pajak
Mar 24, 2025


On Conversation
In an exciting and terrifying turn of events, I have journeyed into the realm of publishing. A recent artist residency allowed me the...

Anne Mason
Mar 24, 2025


On Relapses, Retreats, and Returns
It’s been one year since my health took its latest turn. Perhaps it was a relapse. Perhaps a pseudo-flare. Perhaps the label does not...

Anne Mason
Feb 24, 2025


No What!
Forest Service Sign seen on a hiking trail: Warning – Extreme Hazard – No Water, No Shade, No Cell Service HMMM? This past month I...

Mark Pajak
Feb 20, 2025


