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Myeloma On The High Plains


15 Months/Tons
It has been almost fifteen full months since my CAR T cell procedure. December 2023 seems like a long time ago. Again, I am reminded that...
Mar 244 min read


On Conversation
In an exciting and terrifying turn of events, I have journeyed into the realm of publishing. A recent artist residency allowed me the...
Mar 244 min read


On Relapses, Retreats, and Returns
It’s been one year since my health took its latest turn. Perhaps it was a relapse. Perhaps a pseudo-flare. Perhaps the label does not...
Feb 244 min read


No What!
Forest Service Sign seen on a hiking trail: Warning – Extreme Hazard – No Water, No Shade, No Cell Service HMMM? This past month I...
Feb 203 min read


???
Not sure where this is all going, so let us begin here: Welcome to the start of the second decade. I was diagnosed with Multiple Myeloma...
Jan 214 min read


The Trip
“…. This is the worst/best trip, I’ve ever been on” -- Beach Boys, Sloop John B Happy Holidays to all who visit this site. May the joys...
Dec 21, 20244 min read


Gobble Gobble
Post Car T cell update at 11 months: Hard to believe that it has been 11 months since my Car T cell procedure. At times it seems as if it...
Nov 26, 20243 min read


Just Livin’
OK first things first - A 10-month post Car T cell update: The latest blood draw shows no evidence of a monoclonal peak which has always...
Oct 24, 20243 min read


11 Holes?
How in heavens name does one recover and pick up the pieces of what was your life after you hear those words “you have cancer”? That is...
Sep 24, 20243 min read


To Fish Or Not To Fish
I am not an angler. In fact, the last time I wetted a line so to speak was…. Well, I cannot remember. It was well before I was diagnosed...
Aug 26, 20244 min read


Dream On
“I have learned from experience that the greater part of our happiness or misery depends upon our disposition and not upon our...
Jul 23, 20244 min read


Better
Happy June! What a month – warmer mornings and evenings begin to become the routine. The start of summer. Sitting outside on the porch,...
Jun 24, 20243 min read


It is not about more.
First an update: It has been almost 150 days since I received my reconfigured T-cells and according to the most recent blood draw...
May 22, 20243 min read


Here we go!
Day 90 arrived. Three months after I got my reconfigured T-Cells, a PET/CT scan was ordered to evaluate my condition. The results of the...
Apr 18, 20243 min read


Not Quite
By the time this is posted, I will be on about Day 85 post Car T Cell introduction/re-introduction. Day 90 is a big day because a blood...
Mar 22, 20243 min read


On Advocacy - In Honor of MS Awareness Month
I incurred a minor relapse. The statement is as blunt and disruptive as the experience. MS relapses have no finesse or tact. There is not...
Mar 15, 20244 min read


In Progress – Part Two
My previous post (January) included the experiences and thoughts regarding the first 14 days of a Car T cell protocol. This post deals...
Feb 21, 20244 min read


On Studies and Tests
Growing up, I was an excellent student. I studied diligently, invested time in homework, and came to class prepared. A+ report cards were...
Jan 23, 20244 min read


In Progress
Well, the good news is that I have made it past Day 14, which in a Car T Cell protocol is a benchmark day. Research/History of the...
Jan 22, 20244 min read


The Wait
Happy Holidays to all who happen upon this post. May this Holiday Season bring you joy and peacefulness. In a little less than two weeks...
Dec 18, 20233 min read
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