Just Livin’
OK first things first - A 10-month post Car T cell update: The latest blood draw shows no evidence of a monoclonal peak which has always...
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Sep 243 min read
11 Holes?
How in heavens name does one recover and pick up the pieces of what was your life after you hear those words “you have cancer”? That is...
Aug 264 min read
To Fish Or Not To Fish
I am not an angler. In fact, the last time I wetted a line so to speak was…. Well, I cannot remember. It was well before I was diagnosed...
Jul 234 min read
Dream On
“I have learned from experience that the greater part of our happiness or misery depends upon our disposition and not upon our...
Jun 243 min read
Better
Happy June! What a month – warmer mornings and evenings begin to become the routine. The start of summer. Sitting outside on the porch,...
May 223 min read
It is not about more.
First an update: It has been almost 150 days since I received my reconfigured T-cells and according to the most recent blood draw...
Apr 183 min read
Here we go!
Day 90 arrived. Three months after I got my reconfigured T-Cells, a PET/CT scan was ordered to evaluate my condition. The results of the...
Mar 223 min read
Not Quite
By the time this is posted, I will be on about Day 85 post Car T Cell introduction/re-introduction. Day 90 is a big day because a blood...
Mar 154 min read
On Advocacy - In Honor of MS Awareness Month
I incurred a minor relapse. The statement is as blunt and disruptive as the experience. MS relapses have no finesse or tact. There is not...
Feb 214 min read
In Progress – Part Two
My previous post (January) included the experiences and thoughts regarding the first 14 days of a Car T cell protocol. This post deals...
Jan 234 min read
On Studies and Tests
Growing up, I was an excellent student. I studied diligently, invested time in homework, and came to class prepared. A+ report cards were...
Jan 224 min read
In Progress
Well, the good news is that I have made it past Day 14, which in a Car T Cell protocol is a benchmark day. Research/History of the...
Dec 18, 20233 min read
The Wait
Happy Holidays to all who happen upon this post. May this Holiday Season bring you joy and peacefulness. In a little less than two weeks...
Dec 14, 20234 min read
On The Gift of Visibility
I opened my mailbox the other day to find a small package containing a handmade card and a light paperback: Single Handedly: Learning to...
Nov 21, 20234 min read
GIANTS
Happy Thanksgiving? What, with cancer? OK, as promised here is an update on my CAR T cell process. I am proceeding forward with the Car T...
Oct 20, 20233 min read
Mashed Potatoes
Well, October finds me preparing for Car T cell therapy. I am scheduled to have my T-Cells harvested in early November. Once harvested,...
Oct 11, 20234 min read
On Ringing Silence
Whenever crafting a performance, I always mine for the moments of silence - the reverent pauses that allow for the impact of the...
Sep 18, 20233 min read
Operating Small
It is just about Fall. As a personal update, we are working towards a Car T cell therapy protocol for the treatment of my Multiple...
Sep 9, 20234 min read
On Pins and Needles
I hope I have not kept you waiting in anticipation for this month’s column, dear reader. It comes to you late in order to accommodate a...
Aug 21, 20234 min read
Overwhelmed?
So, this is how it is for me: No matter how much I try to accept my fate, I still struggle with these facts: I have cancer/multiple...
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